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Not Fade Away: A Memoir of Senses Lost and Found, by Sascha Alper
Download Ebook Not Fade Away: A Memoir of Senses Lost and Found, by Sascha Alper
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Review
Praise for Not Fade Away"A remarkable story of resilience and heart, Not Fade Away follows Rebecca Alexander as she must navigate the world cursed with a rare genetic disorder that will one day rob her of both sight and hearing. Bereft of self-pity, funny, and bursting with honesty, Not Fade Away will get its hooks in you. I promise that by the end of her story, you will fall just as in love with Rebecca as I have."—Susannah Cahalan, New York Times bestselling author of Brain on Fire "Her eyes and ears may be declining, but Rebecca's sense of self is sharply focused and profoundly tuned. By sharing her life, she has enriched mine and will yours, too. I love this woman."—Meredith Vieira "There is a saying that goes—you never know how strong you are until being strong is the only choice you have. Rebecca Alexander's indomitable spirit spills out on to the pages of this incredible memoir. She will lift you up...the way she did for me."—Hoda Kotb, New York Times bestselling author of Ten Years Later and Hoda, and Emmy-award-winning anchor of the Today show“An honest and eloquent look at life … Alexander emphasized the importance of embracing the here and now, of being present and grateful for the gift of life, in whatever shape it might take.”—Kirkus Reviews“Profoundly inspiring … [Rebecca’s] ability to find so much to be grateful for after being dealt such an unfair hand challenges those of us with far fewer hardships to treat each day as a gift.”—Publishers Weekly“Wise and realistic instruction in intentional living, grace, and overcoming obstacles great and small.”—Booklist
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About the Author
Rebecca Alexander, thirty-four, is a psychotherapist, spin instructor, volunteer, and an extreme athlete who is almost completely blind and deaf. Born and raised in the San Francisco Bay Area, she currently lives in New York City.
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Product details
Hardcover: 320 pages
Publisher: Avery; First Edition edition (September 11, 2014)
Language: English
ISBN-10: 1592408311
ISBN-13: 978-1592408313
Product Dimensions:
5.8 x 0.9 x 8.5 inches
Shipping Weight: 15.2 ounces (View shipping rates and policies)
Average Customer Review:
4.6 out of 5 stars
111 customer reviews
Amazon Best Sellers Rank:
#423,536 in Books (See Top 100 in Books)
Having the privilege of knowing author Rebecca, I could write for hours about her perseverance, how inspiring and strong she is and how to me she is essentially a superhero. But none of these things, (as related to her disabilities) define who she is for even a minute, nor do they define this book.What starts as a truly unique couldn't write this sh*t if you tried kind of story, quickly reveals itself to be full of humor, humanity and the universal truths and questions we all face. I felt as if I was sitting across from Rebecca being happily bombarded by her contagious humor and zest for life. Her personality, honesty and relatable experiences jump off each page, prompting the reader to consider not only their own blessings and challenges, but the larger questions about being the best friends, sisters/brothers, lovers and people we can be.We all stand to learn so much from those like Rebecca who are brave enough not only to live life SO large but also to share each moment so honestly with the world. Every anecdote in this book is a reminder of how adaptable, resilient and downright loving we can all choose to be when given the choice. Not a light read to be sure, but as only Rebecca can, this book takes the scariest and loneliest aspects of our lives and creates space for laughter, love and hope. A GREAT read.
I can relate to Rebecca’s dread of getting her vision tests, knowing already what they will say: “your vision has gotten worse again.†From about the age of 5 to 35, I dreaded the eye doctor because I always got the same news: “your vision has gotten worse again, here are thicker glasses and stronger, less bearable, contact lenses for you to endure. Have a nice day!†Even though they never told me I was going blind, I certainly seemed to be in the express lane for it. Because of that, I have always been fascinated by other people’s stories of vision loss or of blind people, I guess because someday I figured I could very well be among them, at the rate I was going.I read this book expecting a story of what it would be like to find out you are going blind and deaf, but what I got was so much more. What I found was not really a story of coping with disabilities, but more a story of living life to the fullest, regardless of your circumstances. Rebecca is funny, intelligent, compassionate, and extremely athletic; accomplishing things already that most fully able-bodied people never even come close to achieving in their lives. I have no doubt, given her strong network of family and friends, and her amazing perspective and perseverance, that she will continue to thrive, no matter what path her eyes and ears decide to go down.Truly a remarkable woman and I thank her for this uplifting read and wish her the very best, if she ever reads this! Highly recommended!
Rebecca Alexander's "Not Fade Away" is a journey that's filled with a full range of emotions from sad and shocking to funny and hopeful. At 19, she received the news that she had Usher Syndrome Type III. It's a rare genetic mutation with profound consequences--loss of sight and sound. But, even at 12, when an ophthalmologist told her parents she would need a guide dog by 20, Rebecca never simply gave in to the diagnosis at hand. Along the journey, we see the familiar life of many teenagers including possibly ourselves. From her parents' divorce to her first romance to moving far away for college, so many events in this young life ring true. And she manages to give us a valuable insight into a world that so few of us understand. As a child, I recall a bizarre conversation that seems more common now than I realized. I was asked if I had to lose one thing, sight or sound, which would it be? Rebecca never had the choice. Yet, she takes the most out of life she can and truly practices the concept of Carpe diem-Seize the day!Above all, Rebecca Alexander's book left me feeling more humble than I could imagine. But, it also left me with such a wonderful feeling of hope. It's a wonderful book to read and share. Of all the books I have read over this past year, Not Fade Away ranks at the top!
Great read, heartwarming and inspirational. Rebecca draws you into her life, her friends, her family and by the time you're done, you feel like you are part of her big, warm, supportive network. I was a little apprehensive starting the book, preparing to read about some very difficult challenges for this young vibrant woman, but instead, I walked away awed and inspired by how Rebecca turns thoughts of pity to admiration for how she has chosen to live life to it's fullest, choosing to celebrate everything she does have rather than what she has lost!
This autobiography is about a truly an unbelievable courageous young woman informing us from her first diagnosis of a genetic disease which will probably result in another Helen Keller! Even though she learns of her disease at a early age, she is going through life, as we speak, continuing to live as a "healthy' professional. I could not put the book down to learn of what was going to transpire next in her life.
Reading Rebecca Alexander's memoir is like listening to a good friend confide what it is like to gradually lose sight and hearing. As she goes through the progression of how her syndrome effects her body and her life, she lets you in on the ups and downs of her journey without pretense. Rebecca's voice is honest, courageous, funny and inspiring. I loved her descriptions of the many physical challenges she decides to take on and how she is able to harness enduring strength, even as other parts of her body are becoming weaker. A joy to read.
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